It's that time of year! Here are my tips for making sure this spoonie holiday season is merry and bright!
Posts
The ‘Upsides’ of Chronic Illness
It’s easy to focus on the bad with a chronic illness. I mean, you’re sick. Forever. That’s reason enough to be negative. But recently I’ve realized that negative thinking is not helping me. That doesn’t mean I’m not allowing myself those occasional bad days, or pity parties. I think we all need an outlet like… Continue reading The ‘Upsides’ of Chronic Illness
A Comedy of Errors, or “How to Become One with the Floor”
I wish I could say this was the first time this had happened to me. It wasn't. I wish I could say that because this had happened before, I knew how to deal with it. I didn't. I wish I could say that I dealt with this rationally. Nope.
A Week in My Life with Chronic Illness
https://youtu.be/nF5qZ7KiVsI Twin Talk is Alex's Youtube channel with her twin sister! Check out her latest video!
The Truth, the Whole Truth, Nothing but the Truth
As I write this, I’m still debating whether to post it. This blog has sort of become a public diary in a way, expressing thoughts and feelings I wouldn’t dare to say aloud. I don’t typically share my deep feelings. My friends and family all know me really well, and I don’t hide things from… Continue reading The Truth, the Whole Truth, Nothing but the Truth
To Find, or Not to Find: That is the Question
The first week of school is finished and capped off with a 3-day weekend. No class on Labor Day, so I have another week to finish the readings I was assigned. Once the weekend came, all I could think was thank God. I have organized my schedule so that on most days, I only have… Continue reading To Find, or Not to Find: That is the Question
New Semester, New Dreams, New Struggles
Day One, Fall 2019 Semester: One class, begins at 4:00pm. Continues until 6:40, but has a break in the middle, and is taught by my favorite professor. Able to sleep in, do laundry, and organize myself and my things before heading to class Day Two, Fall 2019 Semester: Arrive on campus at exactly 9:00 to… Continue reading New Semester, New Dreams, New Struggles
Enough is Enough
So here we are again. Just me, my bed, and my pain. Oh, and about a metric ton of pain killers. Who knows what’s caused it this time? Maybe I overexerted myself walking up that flight of stairs, or possibly I sneezed too aggressively. (You’ll have to excuse the sarcasm; it’s a coping mechanism.) Either… Continue reading Enough is Enough
Musings from the Mountain
I've spent the last month or so up in the Shenandoah Mountains working as the Artistic Director for a Music and Theatre Camp. This place is one of my favorites in the world, even after traveling through parts of Europe, and is truly a place apart. Being in the mountains, MAT camp (as lovingly rebranded… Continue reading Musings from the Mountain
Learning to Live with Limits
Since I’ve been diagnosed with Fibromyalgia and CFS/ME, I’ve been trying to spend my spoons wisely. Take time to rest, prioritize, and self-care. This is a work-in-progress as I’m the type of person who, when I’m set on a project or an idea, I want to see it through start to finish, all in one… Continue reading Learning to Live with Limits
Worry Warrior- Life with Chronic Illness 