Myalgic Encephalomyelitis. As difficult to diagnose as it is to pronounce, ME is more commonly known as Chronic Fatigue Syndrome. I personally try not to tell people about this diagnosis as they generally believe it’s an excuse to be lazy or complain about being tired. The catch-all name “Chronic Fatigue Syndrome” doesn’t help with misconceptions… Continue reading What’s Wrong With You? Part 3: ME/CFS
Tag: Chronic Illness
Class is a Pain in the Ass: Surviving School with a Chronic Illness
Ah college. A wonderful time filled with doubt, debt, binge drinking, and research papers written the night before. School can be lots of fun and it can also be tear-your-hair-out stressful. When you’re a spoonie, the stress has a way of following you on days when other people would be skipping. Sometimes it seems like… Continue reading Class is a Pain in the Ass: Surviving School with a Chronic Illness
Updates
An update and explanation
Why I Dislike the Pain Scale
Have you ever had a headache? Or stubbed your toe? Or accidentally burned yourself because you were too enthusiastic when flipping pancakes? (Just me…?) If so, you can probably remember what that pain feels like. Maybe not specifically, but at least enough to empathize with someone who’s done the same. But what about more serious… Continue reading Why I Dislike the Pain Scale
What’s Wrong With You? Part Two: Fibromyalgia
Fibromyalgia (fi·bro·my·al·gi·a) is defined by the Center for Disease Control as a “condition that causes pain all over the body, sleep problems, fatigue, and often emotional and mental distress”. Fibro affects about 4 million adults in the US, yet the cause still is not known. The CDC reminds us however that fibromyalgia can be “effectively… Continue reading What’s Wrong With You? Part Two: Fibromyalgia
What’s Wrong With You? Part One: Endometriosis
en·do·me·tri·o·sis /endōˌmētrēˈōsəs/ Noun- a condition resulting from the appearance of endometrial tissue outside the uterus and causing pelvic pain. As concise and accurate as this definition is, for people unfamiliar with endo, this does nothing to help understand what endometriosis is, and what it does. In order to understand endo, you have to understand the… Continue reading What’s Wrong With You? Part One: Endometriosis
Spoons? Spoons
If you have a friend, coworker, or family member with a Chronic Illness, you've probably heard the word 'spoons' used in every situation except when there's soup. So what's with the spoons? Are there forks also? And what on earth is a Spoonie? The Very Beginning~ In 2003, Christine Miserandino wrote an essay titled "The… Continue reading Spoons? Spoons
Worry Warrior- Life with Chronic Illness 