Fibromyalgia (fi·bro·my·al·gi·a) is defined by the Center for Disease Control as a “condition that causes pain all over the body, sleep problems, fatigue, and often emotional and mental distress”. Fibro affects about 4 million adults in the US, yet the cause still is not known. The CDC reminds us however that fibromyalgia can be “effectively… Continue reading What’s Wrong With You? Part Two: Fibromyalgia
Author: Alexandra
Fibromyalgia, CFS, Depression, Anxiety, EDS, oh my! Life as a spoonie isn't easy, but love and community make it a little easier.
What’s Wrong With You? Part One: Endometriosis
en·do·me·tri·o·sis /endōˌmētrēˈōsəs/ Noun- a condition resulting from the appearance of endometrial tissue outside the uterus and causing pelvic pain. As concise and accurate as this definition is, for people unfamiliar with endo, this does nothing to help understand what endometriosis is, and what it does. In order to understand endo, you have to understand the… Continue reading What’s Wrong With You? Part One: Endometriosis
Thoughts on a Bad Day
Sometimes, no matter what we do, us spoonies are going to have bad days. Sometimes that means a particularly terrible pain flare-up, other times that means the depression overwhelms you. Today I’m feeling a bit of everything. My pain for the past few days has been pretty consistent: ache and spasms in joints and spine… Continue reading Thoughts on a Bad Day
How to be Fibro-Friendly
A handy reference sheet for my loved ones, and possibly some peace of mind for those with friends and family who are chronic pain warriors
My Toolbox
When living with a chronic illness and disability, everyday life can be a struggle. Sometimes just getting out of bed in the morning can feel like running a marathon in high heels. That’s why it’s important for us Spoonies and Warriors to have a Toolbox or Care Kit. Your toolbox doesn’t have to be in… Continue reading My Toolbox
An Open Letter
To my Friends, Family, and Loved Ones, Hi there. It’s been a while since we’ve talked. Not chatted, we do that a lot, but really talked. How are you? How are you really doing? Tell me all the ups and downs, the hopes and worries, the dreams and aspirations. Fill me in on life. I’m… Continue reading An Open Letter
Spoons? Spoons
If you have a friend, coworker, or family member with a Chronic Illness, you've probably heard the word 'spoons' used in every situation except when there's soup. So what's with the spoons? Are there forks also? And what on earth is a Spoonie? The Very Beginning~ In 2003, Christine Miserandino wrote an essay titled "The… Continue reading Spoons? Spoons
Venting Thoughts on the Internet
Thanks for joining me! This blog is a place for me to rant, discuss, and offer my general fog-affected thoughts on Chronic Illness and life with an invisible disability. Feel free to comment and share! Ugh- me every morning
Worry Warrior- Life with Chronic Illness 