https://youtu.be/C447WksP-_M TwinTalk is Alex's vlog channel with her twin sister! Check out her latest video on her health updates!
Tag: #chronic pain warrior
Babe with a Mobility Aid
I'm working on a show this month. A great show. "Good Kids" by Naomi Iizuka. (While a great show, some caution if you wish to read/see it. Trigger warning for sexual assault.) In the show, there's a character named Deirdre who is in a wheelchair. The show isn't about her, not at all, though towards… Continue reading Babe with a Mobility Aid
Spring Cleaning- Chronic Illness Edition
Ah spring time! The sun comes back, the birds sing again, and the pollen in the air reminds us why we don’t usually go outside in the first place. It’s around this time of year that people begin a major cleaning of their living space. The dreaded Spring Cleaning. I don’t know about you but… Continue reading Spring Cleaning- Chronic Illness Edition
Post-Op Thoughts
Hi everyone! For those of you who don’t know, I underwent a diagnostic laparoscopic surgery on Monday to look for the cause of my pelvic pain. Since I was 17, I’ve been on continuous birth control to skip my periods due to extreme fatigue, nausea and vomiting, cramping, emotional upheaval, and debilitating pain. My first… Continue reading Post-Op Thoughts
Class is a Pain in the Ass: Surviving School with a Chronic Illness
Ah college. A wonderful time filled with doubt, debt, binge drinking, and research papers written the night before. School can be lots of fun and it can also be tear-your-hair-out stressful. When you’re a spoonie, the stress has a way of following you on days when other people would be skipping. Sometimes it seems like… Continue reading Class is a Pain in the Ass: Surviving School with a Chronic Illness
Why I Dislike the Pain Scale
Have you ever had a headache? Or stubbed your toe? Or accidentally burned yourself because you were too enthusiastic when flipping pancakes? (Just me…?) If so, you can probably remember what that pain feels like. Maybe not specifically, but at least enough to empathize with someone who’s done the same. But what about more serious… Continue reading Why I Dislike the Pain Scale
What’s Wrong With You? Part Two: Fibromyalgia
Fibromyalgia (fi·bro·my·al·gi·a) is defined by the Center for Disease Control as a “condition that causes pain all over the body, sleep problems, fatigue, and often emotional and mental distress”. Fibro affects about 4 million adults in the US, yet the cause still is not known. The CDC reminds us however that fibromyalgia can be “effectively… Continue reading What’s Wrong With You? Part Two: Fibromyalgia
What’s Wrong With You? Part One: Endometriosis
en·do·me·tri·o·sis /endōˌmētrēˈōsəs/ Noun- a condition resulting from the appearance of endometrial tissue outside the uterus and causing pelvic pain. As concise and accurate as this definition is, for people unfamiliar with endo, this does nothing to help understand what endometriosis is, and what it does. In order to understand endo, you have to understand the… Continue reading What’s Wrong With You? Part One: Endometriosis
Thoughts on a Bad Day
Sometimes, no matter what we do, us spoonies are going to have bad days. Sometimes that means a particularly terrible pain flare-up, other times that means the depression overwhelms you. Today I’m feeling a bit of everything. My pain for the past few days has been pretty consistent: ache and spasms in joints and spine… Continue reading Thoughts on a Bad Day
My Toolbox
When living with a chronic illness and disability, everyday life can be a struggle. Sometimes just getting out of bed in the morning can feel like running a marathon in high heels. That’s why it’s important for us Spoonies and Warriors to have a Toolbox or Care Kit. Your toolbox doesn’t have to be in… Continue reading My Toolbox
Worry Warrior- Life with Chronic Illness 